Toot! Toot! All Aboard the Wibbly Bus. You've Got a Ticket to Ride Blogbod!
So, Come Play a While in My Sparkly Bubble of Merriment and Fabulocity! (With a Side Order of Young Onset PD) x
Getting a bit regular with these posts of late huh Blogsteroonies? Well, it is time to sort out where I'm at right now....
So, we now have different meds to go with the other meds I'm already chucking down my neck. These New Meds on the Block are meant to help make the first lot continue being efficient in keeping the Wibblywoodles in their box. So far, so good...It is of course an Empire State of Mind, so I am anticipating a soon to be acquired return of epic mojo. Better feckin had be! I've a reputation to uphold!!!
Love, love, love this pic! Look at her...the crazy ass maniac look in her eyes that screams "Yep, right now things could go either way." This is how I feel at times, but although the return of annoying and frustrating symptoms serve to remind me that there is this ticking time bomb inside of me, I am determined to put it all back in it's box and live for now. I then give myself a right royal kick up the arse and then all is again right with the world...hurrah!
I have chosen the Soundtrack as 'Motivation for the Nation.' It's Miss Alicia telling me I'm Superwoman and d'ya know what?..I just might be (with a supafly, boombastic ninja twist) I feel ready to get back in the game. I feel ready to grab life by the bollocks and I truly think that with such good people around me, I can't lose. All because I am......
SUPERWOMAN! (and Batfink, She-Ra and Penelope Pitstop) Let's kick some arse shall we?!?
xxxxx
So, here we are Blogpops, another one for you.....this is all about my latest trip to see......
NEUROBOY!!!!
My Neurotastic Doctor of Brainy Stuff is really awesome. He is always positive and I like going to see him. Unfortunately he doesn't provide fun stuff like lollipops, but he does reassure me that, although I'm still heading for Shit Creek, I'm not without a paddle or two.
He is pleased with my reaction to the meds I am currently on (Ropinirole) and has given me some other stuff to take (Benztrop?!?) This new addition to my overflowing pill box is meant to make the other stuff last longer..more bang for your buck as the Chief said. Here's hoping!!
I must admit, a lot of the stiffler feeling I was experiencing has gone away. Getting up and beginning the day is really much easier and I have even been dancing...more of that later.
So, even though it's a $250 (125 of yer luverleee British pounds) for a consultation that lasts about half an hour and demands a round trip of about two hours, I am a big pat on the back kinda girl and it is good to know from a professional that things are going well and, most importantly that things are moving slowly. Oh yeah baby, we're liking the sound of that! Onwards to the dancefloor...You asking? Cos I'm dancing!
Soundtrack is a treat, a blast from the past: Coldcut, featuring Yazz and the Plastic Population. Hope y'all like it! xx
Spent last weekend with our beloved friends N and G and brood.
The boys were busy doing 'manly hard work' of a construction type affair. There was a particularly beautiful suedette tool belt on display.
Went out with N and had a ball firstly karaoke, then on to a bar for dancing......guess what? it worked!!!!! Mojotastic Mammasita was fully on it. It was the most bizarre thing, we were on fire! I had an absolute ball and can't really explain why....
Was it change of scenery? A different friend? No real expectations? I don't know my beautiful Blogbaps. Personally I put it down to Fake It To Make It A fabulous mantra that really works (most of the time) It can be quite tiring, keeping up the facade of "Oh everything's marvellous daaarling! Still, I firmly believe that if you do indeed follow the whole 'Fake it Till You Make it' kinda thing, sooner or later you believe your own hype and it soon becomes a habit.
The difficulty comes when the faking becomes tiring, people find that difficult . I wonder how many of you who are buoyant and vibrant and full of fabulocity find that friends and acquaintances tend to run for the hills as soon as the wheels start to come off. I have recently experienced this, and it makes me sad because I try really hard to be there for my friends. Simply because everyone has their problems and tribulations to get through. That is why 'Team Sparkle' is vital to me because they see the shitstorm coming (often before I do) and they help me through, I guess because they know the good times are pretty sparkly-fabulous. However, if your name's not down you're not coming in, hahaha.
I am finding that I am intent on travelling at maximum speed, that I become impatient far quicker that I used to and that I'm only allowing myself to focus on the now.
Anyone else (PD peeps or you normalheads) reading this and feel the same? I dunno, I'm feeling a wee bit battle weary still and The Chief was right, a few of 'em won't be around for the bad times. Thankfully. I have Team Sparkle in my bubble so how can I lose?
Soundtrack: A fab NZ band with a song that sounds like how where I'm at. I'm ready to rise up and get back in the saddle and cause a revolution! You in? Hope so! xx
Hello there Blogbods! Haven't been posting for a while, for a number of reasons. Therefore some of the stuff I'm putting out there into Blogtown is out of synch with the dates of publishing. Sorry but you know how it is.....
Firstly, I have been a busy bunny working and generally having fun.
I have been attempting to raise the bar in the quest for Domestic Goddess status (still a work in progress) whilst feeling like I'm trying to prevent the plethora of plates I'm busy spinning from crashing down around me.
The Stiffydeedoodles have been feckin bothering me heaps. I have brought the term 'Everyday I'm Shuffling' to a whole new level. Sometimes when I'm shuffling I gather up so much momentum that it's hard to stop. I look like some demented foal that's just been born and I just waddle around hoping that I don't bump into anything or generate so much friction between my feet and the carpet that I ignite and self combust! Imagine explaining that to the insurance company!!! Strangely, once I'm driving, or in actual fact when I do pretty much anything in public, my shuffling goes away! Wtf huh? That's professional mind over matter right there!
The only other place where power of the mind type shenanigans fail to come out is when I'm dancing. Whereas before, being in the spotlight was something I loved, now I find that it freaks me out. Probably to do with that neon sign again.
I recently ended up having a couple of girlie whirly meltdowns, just about the frustration of it all. It is hard to describe to people what it feels like when you hear a great song and your mind tells you "Go dance my little funk fairy" but the body lets out an emphatic "Feck off, not in these boots that are fashioned in concrete, no chance, there's nothin down for ya."
See? This is what it feels like I'm wearing on my feet when the Stiffmeister comes calling. They're nowhere near being anything remotely delicious and feminine and crazy, sexy, cool...they are concrete boots of lumpy clumpy shitflop rubbish and they make me cry. Yep, yours truly gave in to frustration and cried in the middle of a feckin bar. It wasn't a full on roaring session mind. Just a friend gave me a hug and I couldn't help it.
As I so often say, it's as much of a mental battle (if not more) than a physical issue for me. I think that when I get my dancing mojo back (and I am fully confident that I will) they'll be crying out in wonder at the funky fly shapes dropped by leetle old moi.
Although I fully 100% totally and utterly believe and stand by my mantra of "Fake it to Make It", feck-a-ding-dang-doo, it kinda takes it's toll, that's for sure! I've talked to you darlings before about how we PD Party People will do pretty much anything to make it look like we are 'normal', and it is fully pantsorific when the mask slips as it inevitably does and people see what's really going on. Luckily I have my beloved Team Sparkle in my corner who keep me focussed on the task ahead which is getting on with life and never ever succumbing to this bolshy mare and letting her beat me.
I am off to see the Wizard, the Wonderful Wizard of Oz (AKA Neuroboy) soon, so am hoping he can flick me a script for new drugs that can get me back on my perch. Will tell all in the next post.
Until then my stupendous Blogbods, I will leave you with a most awesome soundtrack. It is a completely cock on collaboration by my very best, most favourite group when I was at school: De La Soul and a funkylicious diva extraordinaire (who incidentally was the inspiration behind the name of me and The Chief's first dog) Chaka Khan.
It ain't all good at the minute.....but it will be...you'll see! Keep the funk fires burning Blogheads!!! xxxx
