Toot! Toot! All Aboard the Wibbly Bus. You've Got a Ticket to Ride Blogbod!
So, Come Play a While in My Sparkly Bubble of Merriment and Fabulocity! (With a Side Order of Young Onset PD) x
Well, hello Blogbaps...this snippet of my daily life is going to be short and to the point. No waffling on today Sir/Madam.
This is where we're at:
Have new drugs...to make the old ones more efficient. Good you say, and yes the toe curling, shin spazzing, calf muscle cock-ups and general stiffywoodledoodles have packed up and buggered off......
.....only to be replaced with a dry mouth, a tumkin that makes me look feckin pregnant and the eyesight of a mole....Bad Times :-(
Therefore I need to acquire some semblance of balance in my life. Enough old drugs to keep me focused (literally), retain the swift metabolism which rendered me svelte and delicious and leave me moist of mouth and enough newbies to tell the stiffy, draggy leg scenario and concrete boots that it's high time it got the memo to jog the fuck on. Hmmmm, they don't make it feckin easy huh?!?
Am actually getting more sleep though!!! Hurrah, long may that continue.
So "The Jenga Tower of Sparkly Splendour" is well and truly on the rise (complete with Penthouse Suite, spa pool and room a plenty for shoes, shoes, SHOES!!!!) Imma comin' back atcha with renewed vim, vigour and vitality Blogblods! So, with my new found "Ooooh yeah baby...it's on" vibe, I will skip off and prepare to slam it...dancefloor stylee with my Disco Dollies at the freakin' weekend. We'll be sho nuff getting into that funky assed groove!!! Apologies of the highest order to any American readers for writing in a somewhat Huggy Bear nature
Soundtrack Time: Depeche Mode (The Chief will be pleased!) and Madonna, who slams it!! Enjoy my darling Blogchums...enjoy.....xxxx
Getting a bit regular with these posts of late huh Blogsteroonies? Well, it is time to sort out where I'm at right now....
So, we now have different meds to go with the other meds I'm already chucking down my neck. These New Meds on the Block are meant to help make the first lot continue being efficient in keeping the Wibblywoodles in their box. So far, so good...It is of course an Empire State of Mind, so I am anticipating a soon to be acquired return of epic mojo. Better feckin had be! I've a reputation to uphold!!!
Love, love, love this pic! Look at her...the crazy ass maniac look in her eyes that screams "Yep, right now things could go either way." This is how I feel at times, but although the return of annoying and frustrating symptoms serve to remind me that there is this ticking time bomb inside of me, I am determined to put it all back in it's box and live for now. I then give myself a right royal kick up the arse and then all is again right with the world...hurrah!
I have chosen the Soundtrack as 'Motivation for the Nation.' It's Miss Alicia telling me I'm Superwoman and d'ya know what?..I just might be (with a supafly, boombastic ninja twist) I feel ready to get back in the game. I feel ready to grab life by the bollocks and I truly think that with such good people around me, I can't lose. All because I am......
SUPERWOMAN! (and Batfink, She-Ra and Penelope Pitstop) Let's kick some arse shall we?!?
xxxxx
So, here we are Blogpops, another one for you.....this is all about my latest trip to see......
NEUROBOY!!!!
My Neurotastic Doctor of Brainy Stuff is really awesome. He is always positive and I like going to see him. Unfortunately he doesn't provide fun stuff like lollipops, but he does reassure me that, although I'm still heading for Shit Creek, I'm not without a paddle or two.
He is pleased with my reaction to the meds I am currently on (Ropinirole) and has given me some other stuff to take (Benztrop?!?) This new addition to my overflowing pill box is meant to make the other stuff last longer..more bang for your buck as the Chief said. Here's hoping!!
I must admit, a lot of the stiffler feeling I was experiencing has gone away. Getting up and beginning the day is really much easier and I have even been dancing...more of that later.
So, even though it's a $250 (125 of yer luverleee British pounds) for a consultation that lasts about half an hour and demands a round trip of about two hours, I am a big pat on the back kinda girl and it is good to know from a professional that things are going well and, most importantly that things are moving slowly. Oh yeah baby, we're liking the sound of that! Onwards to the dancefloor...You asking? Cos I'm dancing!
Soundtrack is a treat, a blast from the past: Coldcut, featuring Yazz and the Plastic Population. Hope y'all like it! xx
Spent last weekend with our beloved friends N and G and brood.
The boys were busy doing 'manly hard work' of a construction type affair. There was a particularly beautiful suedette tool belt on display.
Went out with N and had a ball firstly karaoke, then on to a bar for dancing......guess what? it worked!!!!! Mojotastic Mammasita was fully on it. It was the most bizarre thing, we were on fire! I had an absolute ball and can't really explain why....
Was it change of scenery? A different friend? No real expectations? I don't know my beautiful Blogbaps. Personally I put it down to Fake It To Make It A fabulous mantra that really works (most of the time) It can be quite tiring, keeping up the facade of "Oh everything's marvellous daaarling! Still, I firmly believe that if you do indeed follow the whole 'Fake it Till You Make it' kinda thing, sooner or later you believe your own hype and it soon becomes a habit.
The difficulty comes when the faking becomes tiring, people find that difficult . I wonder how many of you who are buoyant and vibrant and full of fabulocity find that friends and acquaintances tend to run for the hills as soon as the wheels start to come off. I have recently experienced this, and it makes me sad because I try really hard to be there for my friends. Simply because everyone has their problems and tribulations to get through. That is why 'Team Sparkle' is vital to me because they see the shitstorm coming (often before I do) and they help me through, I guess because they know the good times are pretty sparkly-fabulous. However, if your name's not down you're not coming in, hahaha.
I am finding that I am intent on travelling at maximum speed, that I become impatient far quicker that I used to and that I'm only allowing myself to focus on the now.
Anyone else (PD peeps or you normalheads) reading this and feel the same? I dunno, I'm feeling a wee bit battle weary still and The Chief was right, a few of 'em won't be around for the bad times. Thankfully. I have Team Sparkle in my bubble so how can I lose?
Soundtrack: A fab NZ band with a song that sounds like how where I'm at. I'm ready to rise up and get back in the saddle and cause a revolution! You in? Hope so! xx
Hello there Blogbods! Haven't been posting for a while, for a number of reasons. Therefore some of the stuff I'm putting out there into Blogtown is out of synch with the dates of publishing. Sorry but you know how it is.....
Firstly, I have been a busy bunny working and generally having fun.
I have been attempting to raise the bar in the quest for Domestic Goddess status (still a work in progress) whilst feeling like I'm trying to prevent the plethora of plates I'm busy spinning from crashing down around me.
The Stiffydeedoodles have been feckin bothering me heaps. I have brought the term 'Everyday I'm Shuffling' to a whole new level. Sometimes when I'm shuffling I gather up so much momentum that it's hard to stop. I look like some demented foal that's just been born and I just waddle around hoping that I don't bump into anything or generate so much friction between my feet and the carpet that I ignite and self combust! Imagine explaining that to the insurance company!!! Strangely, once I'm driving, or in actual fact when I do pretty much anything in public, my shuffling goes away! Wtf huh? That's professional mind over matter right there!
The only other place where power of the mind type shenanigans fail to come out is when I'm dancing. Whereas before, being in the spotlight was something I loved, now I find that it freaks me out. Probably to do with that neon sign again.
I recently ended up having a couple of girlie whirly meltdowns, just about the frustration of it all. It is hard to describe to people what it feels like when you hear a great song and your mind tells you "Go dance my little funk fairy" but the body lets out an emphatic "Feck off, not in these boots that are fashioned in concrete, no chance, there's nothin down for ya."
See? This is what it feels like I'm wearing on my feet when the Stiffmeister comes calling. They're nowhere near being anything remotely delicious and feminine and crazy, sexy, cool...they are concrete boots of lumpy clumpy shitflop rubbish and they make me cry. Yep, yours truly gave in to frustration and cried in the middle of a feckin bar. It wasn't a full on roaring session mind. Just a friend gave me a hug and I couldn't help it.
As I so often say, it's as much of a mental battle (if not more) than a physical issue for me. I think that when I get my dancing mojo back (and I am fully confident that I will) they'll be crying out in wonder at the funky fly shapes dropped by leetle old moi.
Although I fully 100% totally and utterly believe and stand by my mantra of "Fake it to Make It", feck-a-ding-dang-doo, it kinda takes it's toll, that's for sure! I've talked to you darlings before about how we PD Party People will do pretty much anything to make it look like we are 'normal', and it is fully pantsorific when the mask slips as it inevitably does and people see what's really going on. Luckily I have my beloved Team Sparkle in my corner who keep me focussed on the task ahead which is getting on with life and never ever succumbing to this bolshy mare and letting her beat me.
I am off to see the Wizard, the Wonderful Wizard of Oz (AKA Neuroboy) soon, so am hoping he can flick me a script for new drugs that can get me back on my perch. Will tell all in the next post.
Until then my stupendous Blogbods, I will leave you with a most awesome soundtrack. It is a completely cock on collaboration by my very best, most favourite group when I was at school: De La Soul and a funkylicious diva extraordinaire (who incidentally was the inspiration behind the name of me and The Chief's first dog) Chaka Khan.
It ain't all good at the minute.....but it will be...you'll see! Keep the funk fires burning Blogheads!!! xxxx
Oh Blogbods...beautiful, marvellous wee darlings of splendiferousness the lot of you. Twice in two days huh?... after a posting drought so bad even the WHO (Should probably clarify that I'm referring to The World Health Organisation in this instance, and not auld Daltrey et al) were getting fretful!
As per my last post, I have been tied up in knots lately trying to listen out to the individual sounds that together make up the constant noise in my head. Here's where we're at y'all:
(1) The Drugs Don't Work...They Just Make You Worse......Aaah, Shite
Yep, it's kinda getting to that point, where the Meds of Epic Pretence from Smokescreen City have done all they can for me. My Bolshy Mare is getting to thinking that she's invited to my partaaaay and it would appear that I'm currently employing below par door security who are letting her in. Whatever happened to "Yer name's not down yer not comin' in?" So, time to shake up the bag...get rid of all that's wrong and stomp on in the direction of Good Times (whilst wearing fabulous heels, naturellement) As a result of serious soul searching and the beautiful, wise and amazing people I have in my life offering both a listening ear and total honesty, I've reached the conclusion that me and MedsMan have come to the end of the road. It has been a beautiful relationship...we've laughed, we've frolicked, we've enjoyed so many amazing experiences, we've had that connection that meant we'd even forgotten the bumps in the ride we're on even exist! We've feckin bossed the d floor for real, but now it feels like I'm asking Meds for more than he can give me. It's become that relationship when one party (i.e. me) is investing heaps more time, energy and head space into the partnership than the other one (i.e. MedsMan) who recognises the fork in the road.So, it turns into that age old Fight or Flight scenario.
You should all know me well enough by now to know that I'm a stubborn mare and I will Fight For My Right to Party with all the strength I have, but I am also a realist and know that change can be good so.....it's an email to NeuroBoy and let's see where the ride takes us next. I've marked the township of 'Winning Ways and Unabashed Good Times' down on the map! Onwards!!!!!!!!!!!!!!!!!!!
(2) This Feckin Blog is Proper Doing My Tits In!
Awww, don't be fretting, it's not you...it's me! I love this blog, with all my heart and I believe in it completely. My problems stem from being a pat on the back kinda chick... I'm much more of a bouncy, eager, in yer face puppy than a cool, distant, aloof cat, assuming that makes any sense. In short.....I know I've got to keep it real and that, ultimately, this is a vehicle for my own ramblings. However, I am, and always will be someone who will try to help, comfort, heal or empower others if ever I can. That's just how I roll.
So, What Becomes of 76 Sparkles? I feel the future is two fold and this is where you Blogbuns come in. I have questions galore...like Who are you? Do you check in regularly? If you do....what the feck motivates you to do so? Is it the PD stuff, or the Twinkly, Sparkly stuff? A writer (should) know their audience, but in the world of Bloggage, I guess it's different huh? I suppose I just want to get to know you better....c'mon over.....let's chat....I'll bring chocolate! Help me make some sense of what this is and where we go from here. The vision is of 76 Sparkles being a Community of Cool, a Mecca of Merriment, an Information Station Across the Nation(s) a Funfest, a Glitterific Gathering of Good Times and Greatness......you feel me?
Yeah...I think we're about ready for the Soundtrack.....First up: a treat of a find....Michael Kiwanuka or The New Otis as I like to call him. He sounds like honey and feels like a comfortable blanket and he makes me smile a wide, wide contented smile. Flip reverse to the Wannabe Scousers (well it looks like they're in shell suits to me!) or the treat that is BVSMP. A retro delight. Either way...Imma need some love y'all....and feedback..........now we out. x
Howdy Doody y'all. How are youse? I completely hope that you are tippety toppety terrific in every way.
As for moi?.....I am frustrated in major dollops Blogballs.....and the reasons are these:
The makeover of my faborific blog (yep, this one right here) is becoming like a fecking trial or something. You see, what began as a method to empty my head of all that is crazy and bewildering, thus affording peace and quiet for a while, swiftly became something folks actually read and in some instances, even commented on! Wtf?!?....I know, who would've thought huh? Things have seriously changed in Sparkle Land because this 76 Sparkles lark is no longer my personal online diary. I really want it to be useful and serve a purpose outside of my own jibberings and I'm aware that I haven't posted anything new for ages. I'm struggling with content versus aesthetics if the truth be told. 76 is not how I want it to be by any stretch of the imagination, but the image
I have in my head is getting ever closer, so keep looking me up.....the train is still comin'.....and the diesel's sho nuff still hummin and well, if
nothing else there'll be always be tunes huh?
Short n sweet today chick peas...just like me haha :-)
Soundtrack: James Born of Frustration. Wicked band of my youth, impression tarnished forever by freaky dream about lead singer dossing in a pissy old tenement stairwell in nothing but a pair of red speedos (shudder) Off to seek cognitive therapy ASAP......xxxxxx
